New Delhi, February 9: On the occasion of International Epilepsy Day, the Ministry of AYUSH of the Indian government emphasized the importance of awareness, understanding, and social inclusion for individuals struggling with epilepsy. The ministry urged society to collectively reduce the stigma associated with epilepsy and promote informed, empathetic conversations.
Epilepsy is a common neurological disorder characterized by seizures. During these episodes, individuals may experience muscle spasms, frothing at the mouth, and upward eye movement. In most cases, epilepsy can be effectively managed with medication and proper treatment. However, in many parts of the country, social and cultural factors complicate the issue. Many people associate epilepsy with evil spirits, past sins, or supernatural forces, leading to inappropriate treatments, harmful practices, and stigma for those affected.
Moreover, epilepsy adversely impacts education, employment, marriage, and social life. The employment situation is particularly alarming. A survey in Kerala found that 58% of individuals with epilepsy were unemployed, compared to just 19% among the general population. Contributing factors include the risk of seizures at work, lack of education, fatigue from anti-epileptic medications, and frequent absenteeism.
Employers often hesitate to hire such individuals. The occurrence of seizures increases social stigma, forcing individuals into low-paying jobs or unemployment. In many cases, jobs are lost altogether.
Despite improvements in education and social status over time, perceptions, stigma, and discrimination against epilepsy have not significantly changed. This stagnation can lead to other Health issues.
Thanks to the efforts of the Indian Epilepsy Association, the Indian judiciary has clarified that epilepsy should not be classified as a mental illness. The practice of divorce due to epilepsy should be discouraged. Experts believe that raising awareness is essential to alleviate the burden of epilepsy. This includes better care, prevention, public awareness campaigns, and incorporating patient care into existing programs.
